Today was okay, not too much happening. We didn't get much sleep last night and are running on fumes. Brian started the day with OT. They worked on his wheelchair some more. The electronics are still causing issues.
Brian's regular Physical Therapist was in meeting today, so Brian had a different therapist cover for him. They did some stretching during the session.
After PT, Brian had an appointment with the counselor. I meet with him next week. It's part of the complete care that Craig offers and something that would be beneficial to all of us.
Besides the enterobacter bacteria, Brian also has MRSA. They are treating both with two different antibiotics. The doctors want his lungs healthy to hopefully do a diaphragm pacer soon. Praying the infections clear quickly. Still waiting on the culture from the bronchoscopy.
Fun day at my school and Maddie's too. Today was PJ Day at Crestwood Elementary. Students donated a dollar to wear their pajamas to school. The proceeds will be donated to our family. One little sweet first grader took a dollar from his tooth fairy money and brought it to school.
It's was 70's day at Truman since Brian was born in 1972. Maddie was all decked out for the day.
Thank you for your prayers and good vibes!
Lots of love for you guys!! These pictures are good reminders of the support system you have in STL. Keep working hard and learning as much as you can. Love you guys!! :)
ReplyDeleteBrian and family, It's Jim Haraf from Piedmont Chicago. I've been following your progress, keep up the good work! Your family network is truly something special !!! You should really be proud of your daughters! I'll continue to pray for your recovery, God bless you all.
ReplyDeleteSo completely amazing about spirit week and the fundraiser at your school. Maddie looked amazing all week. I am thankful some things are progressing and are praying for the things that aren’t. We have some prayer warriors that are doing and believing the same. Love you all and pray for supernatural strength for both of you. ��❤️
ReplyDeleteBrian and Julie, I hope Brian felt better today. We continue to pray for his progress. Setbacks happen to all of us but our faith remains strong, just like Brian! We love you Brian! We love you too Julie. You are such a great example to me for your loyalty and love. While we can't predict the future, you have a gift that will help you more than anything and that is a heart of love. I've always heard Love conquers all. With God supporting you with his help and God's love; I'm believing Brian will conquer this illness.
ReplyDeleteTo you proud parents, aren't these pictures the most precious gifts? These little kids are so precious to be supporting Maddie and giving of themselves this week. They look like they are having fun. A lot of smiles from the kids; and assuredly a lot of proud parents. It's very impressive for the school to be so involved. What a great example they are teaching the children. Hat's off to all of them!!!
Another day tomorrow. I hope both of you get a good night's rest and a have Great Day tomorrow. We'll be thinking about you. We love you very much.