Today started with OT. They were still working on the chair and calibrating it so that Brian could drive it better. During PT, the therapist did e-stim with Brian on his left ankle and quad. Brian responded to the stimulation in his ankle, foot, and toes. Not too much stimulation in the quad today.
We had a mid-day break in the schedule, so we took advantage of the weather and ate outside. It was Hospital Appreciation Week and there was a cupcake and ice cream truck for the patients and staff.
After lunch, we were scheduled for a class led by a former Craig patient who is quadriplegic. The topic was about traveling on a plane. That is no easy task to say the least.
The day ended with an 90-minute session for me to learn about the ventilator...how it works, how to troubleshoot once we get home. We are still praying (please pray) that Brian gets the diaphragm pacer which could give him hours and hours off the vent, but he would need the vent at night. This is just all overwhelming. I'm sure I'll be more comfortable with time.
The Spirit Week at Maddie's school ended with "Blue Day" since blue is Brian's favorite color. Maddie had a great time honoring her dad this week!
Please keep us in your prayers. We pray for patience, strength, and faith every day. It's easy to get discouraged at times. Thank you for your support!
Julie,
ReplyDeleteI can't begin to imagine all that you and Brian are learning and trying to implement. Your situation would be overwhelming to anyone; so don't feel ashamed to claim your feelings. I will pray God lifts this from you and gives you peace.
As we support you in prayer we need to be focused on praying for Brian to be strong enough to get the diaphragm pacer. This is a key to resolve one of your biggest concerns.
If Brian is willing to work hard we can surely support him and you in prayer. I continue to celebrate every success; and Thank God for his grace believing he will meet all your needs.
We love you very much.
You say: 'I can't manage'
ReplyDeleteGod says: I will supply all your needs (Philippians 4:19)
Praying that you can feel HIS strength and comfort and give you all what you need to get through each day.
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