Brian did well today. His day started with PT working on stretching. After PT, Brian headed to OT. Both therapists showed us different stretches to do with Brian throughout the day.
We had educational classes about pressure injury prevention and an orientation of spinal cord injuries. It was a hard day taking in all the new information. Sometimes, this experience seems surreal.
We are also in the process of getting measurements for home renovations. Although we don't know what Brian's ultimate progress will be (and we are BELIEVING he will do amazing things), we have to prepare for his current situation so he can transition back home after we leave Craig.
Brian's blood pressure was better today. That's a blessing! They increased his pacemaker to 90 beats per minute to see if that helps stabilize the pressure.
Brian had a fluoroscopy yesterday. It is an x-ray that captures real-time moving images. The doctors wanted to see if Brian's diaphragm muscles were working when he was off of the vent. Unfortunately, they were not. Our next step is for Brian to hopefully get a diaphragm pacer. If he has phrenic nerve stimulation, the pacer would give support to Brian and possibly allow him to be off the ventilator for periods of time. We could really use your specific prayers that he has stimulation to get the pacer.
Brian ended the day with a clean shave from my dad. He felt much better and it's nice to see that baby face again!
Please keep us in your prayers and positive thoughts. Some days are just tougher than others. We know God has our plan. We pray for strength to get through each day.
Thanks for the continued updates Julie. We're praying that Brian has nerve stimulation. Keeping you both and the girls in our daily prayers. Keep working at it Brian. You've come so far and we're behind you 150%!
ReplyDeletePraying! May you both have peace, courage, and strength. See you when you’re back in town!
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