We are home!

Brian was discharged last night. It’s so good to home!

Brian Update

July 12, 2019

It's been quite a week for Brian. I had to call the ambulance on Sunday morning because he wasn't feeling well. Brian ended up in septic shock and has been in the ICU ever since. Doctors found a kidney stone that was obstructing the kidney, which caused an infection. Unfortunately, that infection moved into the bloodstream. Brian also had a bad UTI, most likely resulting from the kidney issues He still has several kidney stones that need to be removed, but that can't happen until the infection is completely gone.

The good news is Brian is responding well to the IV meds they are giving him. If his next blood culture comes back negative, we can hopefully head home in a few more days.

Being back in the ICU brings up tough memories.from when this all began. Luckily, Brian is in great spirits and the staff loves him. We are very appreciative of the amazing care he's receiving.

We welcome any prayers/good thoughts/positive vibes you send our way.

On a side note...Brian is on my "heine" to send out a golf update. I will try to post that tomorrow. Thank you for all of the donations and sponsorships for the tournament. We've been receiving items from the Amazon Wishlist each day to use in our raffle baskets for the 19th hole celebration. We continue to be humbled by the kindness and generosity of everyone. xoxo

July Update

July 3, 2019

Happy Summer from the Heines! 

Brian is busy planning his golf tournament.  It's neat to see him so involved in the process and have a "sense of purpose" as he likes to say.  Health has been relatively good.  We've had many issues with his catheter and landed in the ER with a two-night stay at the beginning of June.  He has 6-7 kidney stones that will be removed in a few weeks.  Other than that, his neck continues to get stronger each day.

We met with the neurosurgeon regarding the nerve transplant surgery.  He's not a good candidate YET, but the doc hasn't ruled it out for the future.  Brian needs to get more activation with a shoulder shrug  in his trap muscles.  They will serve as the donor nerves.  The good news is the receiving nerves in his lower arms are good to go! It wasn't exactly the news Brian wanted to hear, but we're holding on to the "YET."

Summer has been a little hard for us.  We find ourselves getting stuck in the past....what we used to do, vacations, trips to see friends, and little things like running an errand whenever we needed to.  Delivery services like DoorDash, InstaCart, and Shipt have become lifesavers for me.  

We celebrated our 20-year anniversary the same night the Blues won the Stanley Cup!  Yay us and yay Blues! It was so much fun watching the playoffs and I was sad to see it end.

The girls are doing well.  They take full advantage of sleeping in and enjoying a less hectic summer schedule.  


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Registration for The First Annual Brian Heine Benefit Golf Tournament is OPEN!

You can register with the following link: form.jotform.com/heinestrong/golf  or send payment to Brian through the mail at: 9845 Gerald Drive. St. Louis, MO 63128.  If you would like a electronic copy of the brochure, just send us your email and we will be happy to get one out to you! 

So many people have reached out wanting to donate to the fundraiser. Thank you thank you for your kindness!  

Here are a few ways to help:

• Amazon Wish List for Golf Tournament  Items will be used to create raffle baskets. 
• Unused gift cards or unopened items around the house you don't need. We'd be happy to take them off your hands. :)
  
• Various sponsorship levels (see the sponsorship letter below)
• Donations for silent auction.
• $10 (or more) gift cards

We are happy to pick up the items or they can be mailed to:

Brian Heine

9845 Gerald Dr.y

St. Louis, MO 63128

The money we raise will go directly to paying for caretakers and monthly costs for supplies and medications not covered by insurance.  One hour of care is $25 out-of-pocket.  We were able to afford 4 hours a day when I returned to work and hope to pay for more after the tournament.  

If you are an out-of-town golfer and need to rent clubs, please email Brian at bheine12@gmail.com.

Anyone have a beer connection?  Let Brian know! Rest assured though, his TOP priority is to make sure people have fun and drinks are flowing the day of the tournament.  Brian's willing to sell his body to get money for the beer, but he says he won't get much for it because it doesn't work the way it used to. Brian had another thought to have a dunking booth with him in his electric wheelchair.  I guess that's one way to have a fun time?!?  It'd be a time you won't forget...haha!  He's still got that inappropriate humor, what can I say?

We cannot fully express the love and support we've received throughout this journey.  It's a very humbling experience and I don't know what we'd do without our supporters!

NOTE: Click on the brochure to enlarge.