Day 125-131 (Aug. 17-23)
It's our last weekend at Craig! We are getting close to home. I fly out with a team from Craig on Monday to get things organized at the house and set up supplies. Brian takes a MedFlight home on Tuesday and should arrive in St. Louis around 1:00 in the afternoon.
This is definitely a bittersweet goodbye. While we can't wait to get home (Brian hasn't been home since January), we've met the most amazing staff and families. For the past few days, there have been final farewells to nurses, techs, and therapists. So tough and a constant lump in the throat.
Craig Hospital has prepared us for our next step in the journey. Brian can direct his care so well and I've learned nursing and respiratory skills. We cannot thank the staff enough for helping us through a really hard time.
Although we leave Craig, Brian will receive OT and PT. We will start out in the home and then hopefully transition to outpatient once we get settled in. With Brian having an incomplete injury, we continue to hope for progress and recovery with time.
Thank you from the bottom of our hearts for the love and support you give us. I will update everyone once Brian lands on Tuesday! #heinestrong
Friday, August 24, 2018
Thursday, August 16, 2018
Day One Hundred Seventeen to One Hundred Twenty-Four
Day 117-124 (August 7-16)
I'm not sure how ten days went by without an update. Could've sworn I snuck one in there. LOL
Latest news:
We are headed home soon! We decided to forego the original plan to transition to the apartments after staying in-patient due to Brian's pneumonia. If Brian doesn't pull any shenanigans, the plan is for me to fly home with a team from Craig (PT, Respiratory Therapist, Nurse) on Monday the 27th, and Brian will take a medical flight home on the 28th. We are so excited (and scared), but are SO ready to come home!
Brian is doing well. The docs increased his steroid and are trying to lower one of his blood pressure meds. Overall, his blood pressure has done pretty well, although he likes to sneak a few low ones in from time-to-time. Brian is still working hard in his therapies. His neck is getting stronger and hopefully soon, he can get rid of his head pads. He's keeping a positive attitude and making the staff laugh every day.
It's been a tough week for me. School started for the teachers on Monday. It's always fun to be part of the excitement of Rah-Rah day and a new school year. I miss everyone terribly. I can't wait to see my Crestwood family. The girls went back to school today and we always have a tradition of getting our first day of school pics together. I know they are little milestones, but I sure hate missing them. Kenz is a junior this year and Maddie is an 8th grader. Year 23 for me. Should be 24, but I took a year off when I had Maddie. :)
Elsie (the pup) starts her journey home in the morning. It has been the best therapy having her here for the last six weeks. My sweet brother is road tripping again to KC and then our KC besties will meet my mom and the girls in Columbia to bring her home.
Exciting news! There's another member of the Heine clan! My niece and nephew had their first baby, Carter James, last night. Her twin sister had a baby a few weeks back. It's going to be fun watching the babies grow up together. They look so cute in pics and we look forward to meeting them in person.
Keep the prayers coming for Brian's stability so that our journey home can happen. Thanks for all of your support!
I'm not sure how ten days went by without an update. Could've sworn I snuck one in there. LOL
Latest news:
We are headed home soon! We decided to forego the original plan to transition to the apartments after staying in-patient due to Brian's pneumonia. If Brian doesn't pull any shenanigans, the plan is for me to fly home with a team from Craig (PT, Respiratory Therapist, Nurse) on Monday the 27th, and Brian will take a medical flight home on the 28th. We are so excited (and scared), but are SO ready to come home!
Brian is doing well. The docs increased his steroid and are trying to lower one of his blood pressure meds. Overall, his blood pressure has done pretty well, although he likes to sneak a few low ones in from time-to-time. Brian is still working hard in his therapies. His neck is getting stronger and hopefully soon, he can get rid of his head pads. He's keeping a positive attitude and making the staff laugh every day.
It's been a tough week for me. School started for the teachers on Monday. It's always fun to be part of the excitement of Rah-Rah day and a new school year. I miss everyone terribly. I can't wait to see my Crestwood family. The girls went back to school today and we always have a tradition of getting our first day of school pics together. I know they are little milestones, but I sure hate missing them. Kenz is a junior this year and Maddie is an 8th grader. Year 23 for me. Should be 24, but I took a year off when I had Maddie. :)
Elsie (the pup) starts her journey home in the morning. It has been the best therapy having her here for the last six weeks. My sweet brother is road tripping again to KC and then our KC besties will meet my mom and the girls in Columbia to bring her home.
Exciting news! There's another member of the Heine clan! My niece and nephew had their first baby, Carter James, last night. Her twin sister had a baby a few weeks back. It's going to be fun watching the babies grow up together. They look so cute in pics and we look forward to meeting them in person.
Keep the prayers coming for Brian's stability so that our journey home can happen. Thanks for all of your support!
Monday, August 6, 2018
Day One Hundred Eleven to One Hundred Sixteen
Day 111-116 (August 1-6)
Quick update:
We are still at Craig. Brian is getting the IV antibiotic for pneumonia. The antibiotics seem to be working, which is great.
Rough night and afternoon yesterday. Brian's pacemaker was indicating different rhythms. That hasn't happened before, so the doctors decided to do an EKG throughout the night and extensive bloodwork. His potassium level came back very low, which can be problematic to the heart. Brian's getting additional IV potassium and potassium supplements. Thankfully, the level has come back up for now. The blood pressure is still giving Brian trouble. They will increase his steroid to see if that helps. Because of these latest glitches, we will be at Craig for at least the remainder of the week.
I'm not sure how Brian's instability will play into our future transition plans. His team will meet tomorrow to discuss options and where we go from here.
For our prayer warriors, please pray for stability. We want to come home, but only when Brian is medically stable. I pray the doctors can figure out the reason behind our latest issues so that we can move forward.
Quick update:
We are still at Craig. Brian is getting the IV antibiotic for pneumonia. The antibiotics seem to be working, which is great.
Rough night and afternoon yesterday. Brian's pacemaker was indicating different rhythms. That hasn't happened before, so the doctors decided to do an EKG throughout the night and extensive bloodwork. His potassium level came back very low, which can be problematic to the heart. Brian's getting additional IV potassium and potassium supplements. Thankfully, the level has come back up for now. The blood pressure is still giving Brian trouble. They will increase his steroid to see if that helps. Because of these latest glitches, we will be at Craig for at least the remainder of the week.
I'm not sure how Brian's instability will play into our future transition plans. His team will meet tomorrow to discuss options and where we go from here.
For our prayer warriors, please pray for stability. We want to come home, but only when Brian is medically stable. I pray the doctors can figure out the reason behind our latest issues so that we can move forward.
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